Delivery unit at Children's Hospital saves newborns' lives

June 14, 2009|By Josh Goldstein, Inquirer Staff Writer
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  • A family portrait shows mother Janaya Moscony and father John Lukan holding Makoa John Lukan-Mosconyfor the first time, on Feb. 11, nine days after Makoa was born. Today, he is healthy and weighs nearly 11 pounds.
  • A family portrait shows mother Janaya Moscony and father John Lukan holding Makoa John Lukan-Mosconyfor the first time, on Feb. 11, nine days after Makoa was born. Today, he is healthy and weighs nearly 11 pounds.
  • Day-old Makoa Lukan-Moscony is treated at Children's Hospital of Philadelphia, where a new unit delivers babies with birth defectsinto the waiting hands of neonatal specialists.
  • After a week of gradual and gentle treatment at Children's Hospital, Makoa's intestines had been eased back into his abdominal cavity, and he underwent surgery to close the hernia. At left, surgeons begin the closure; they took care to preserve his belly button. Above, his mother worries over him just after he returned from the surgery.
  • Fed and changed and seemingly content, Makoa rests under his mother's watchful gaze about two weeks after his premature birth on Feb. 2.
  • N. Scott Adzick, Children's Hospital surgeon-in-chief,is a pioneer in fetal surgery.He was accessible and reassuring to Janaya.

The rain forced Janaya Moscony to slow her usual breakneck pace as she drove her black Audi convertible to Paoli Hospital.

She was nervous about the big needle they would stick in her belly for the amniocentesis. What if it hit the baby? Was it worth taking a chance, even a small one?

But she was 35, an age that technically made the pregnancy "high risk." So she had taken a few hours off that Tuesday morning last September to get the test, just to be sure everything was OK.

Her financial clients could wait. Besides, Janaya didn't have to be at her home office in Phoenixville to stay connected. She always carried her BlackBerry.

Janaya signed in for the test, checked her e-mail one more time, and nervously took a seat in the waiting room.

Within minutes, she was following the receptionist down the hall to the exam room.

She didn't have to undress. She lay down on the examining table and bared her belly. They would do an ultrasound first, the technician told her.

Do you want to know the sex? she asked Janaya.

Yes.

She was 16 weeks pregnant. The technician looked at the screen and paused. I can't tell. Let me get the doctor to check, she told Janaya.

Moments later, the doctor came in and repeated the ultrasound.

It's a boy, he told Janaya. And then the hammer.

There's a problem.

What? What did he mean?

The doctor was matter-of-fact: The baby had a birth defect. His intestines appeared to have spilled out of a hole in his abdominal wall.

The doctor told her it was probably something called gastroschisis or possibly omphalocele, a similar defect.

She started to shake. She tried to hold back, control her emotions, but she could not.

Janaya began to cry.

You need to see a specialist, the doctor said. He mentioned Children's Hospital of Philadelphia. Some women, he was telling her, consider termination at this point.

Her mind was reeling.

Would her baby live? Should she end the pregnancy? Could her baby have a normal life?

 

Helpless

Janaya couldn't sleep.

Instead, she sat at her computer, searching for information, studies, anything that might help her understand what was going on - and decide what to do.

Research was something she was good at.

She discovered that most gastroschisis cases involve younger women - those in their late teens or early 20s.

So maybe it wasn't that.

Older mothers were more likely to carry babies with omphalocele. But those babies were at higher risk of having other birth defects.

She was overwhelmed. Could the baby have even more problems?

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