Medical challenge: Finding more balance in decision making at the end of life

October 17, 2010|By Michael Vitez, Inquirer Staff Writer
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  • Todd Groeber, nurse manager of the Medical Intensive Care Unit at Abington Memorial, says millions of Americans believe medicine can do almost anything.
  • A doting Maria Pulido with grandson Juan Pablo Pulido and son Prince at a party for the boy's third birthday in 2006. Prince, of Philadelphia, had hopes for embryonic stem cells after seeing a TV show about a cure in Mexico.
  • Prince Pulido and wife Nahir, left, believed his mother, Maria, above, responded to him - even after others said she couldn't.

Prince Pulido loved his mother. She named him Prince, after all.

And he couldn't let her go.

It didn't matter to him that nurses at Abington Memorial Hospital thought he was harming her by keeping her alive, or felt he was unrealistic - believing that stem cells could regenerate her brain.

This was his mother, she wanted to live, and she had always bounced back.

For more than a year, Maria Pulido was kept alive on a ventilator. She had respiratory failure, heart disease, dementia, and diabetes, and had both legs amputated, one after gangrene. By last winter, medical records show, she was in or near a coma - unresponsive, couldn't follow commands, would react only to pain.

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Prince knew different. She smiled at him. He saw the gleam in her eye.

On May 14, the breathing tube in her throat got clogged and fell out during suctioning at a nursing home. She went without oxygen for 10 minutes and suffered brain damage. Even Prince could see her stare was blank. Still, he continued life support.

He believes in God and in miracles. He's a Philadelphia fireman who races into burning buildings. There's always hope.

Ten times between June 2009 and July 2010, Maria Pulido went by ambulance from a nursing home for ventilator-dependent patients to Abington's intensive care unit, where she spent 69 days and accumulated charges of $1.2 million.

What, if anything, should America do when families insist on continuing life support even though doctors and nurses believe it just prolongs dying?

And why, finally, on July 14, did Prince Pulido decide to let his mother die?

Path of aggressive medicine

About 2.4 million Americans die every year, an estimated 400,000 in an intensive care unit.

Most Americans don't want an ICU death, but many start down a path of aggressive medicine that takes them there. Some doctors say they themselves are partly to blame. They need to do a better job early on telling patients with chronic illnesses the risks and grim realities that likely lie ahead.

But doctors get paid to treat, to do procedures. And they don't get reimbursed to have difficult and time-consuming conversations, to deal with family members who want explanations or have objections. It's easier for doctors to say, "Go for it."

Increasingly, patients who start down that aggressive road are deciding - when hope is gone - to surrender, to focus on comfort at the very end, doctors say. Palliative care teams, meeting with families, have helped that happen.

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