A visit with Destiny, one of St. Christopher's extra-needy preemies

November 21, 2011|By Gloria Hochman, For The Inquirer
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  • Tiny fingers hold tight to Mom in the neonatal intensive-care unit at St. Christopher's Hospital for Children. Mom is Anastasia Shore, and her baby Trinity was born premature, with protruding intestines that had to be tucked back into her body.
  • Tiny fingers hold tight to Mom in the neonatal intensive-care unit at St. Christopher's Hospital for Children. Mom is Anastasia Shore, and her baby Trinity was born premature, with protruding intestines that had to be tucked back into her body. (SHARON GEKOSKI-KIMMEL…)
  • Anastasia Shore finds a tender moment to touch her baby's cheek amid the sterile array of tubes and equipment keeping little Trinity alive in the neonatal ICU.
  • This is Samuel Benique , born Sept. 8. He has lung and kidney challenges - and a loving family that keeps a scrapbook. Samuel was born full-term; though most of St. Christopher's cases are preemies, it handles a range of severe complications.

Destiny Clarissa, the youngest child of Yolanda and Aaron Dent, was born in Abington Memorial Hospital on March 4. She weighed 1 pound, 2 ounces, less than a can of spaghetti sauce.

Twelve days later, she was whisked to the neonatal intensive-care unit (NICU) at St. Christopher's Hospital for Children. No one there could predict when she would leave - or whether she would live.

The NICU at St. Christopher's is classified as a Level IIIC; only the most fragile babies, the ones with a tangle of complicated problems that other area hospitals are unable to treat, find their way to the 136-year-old hospital.

Story continues below.

"We don't see routine preemies," says Jane McGowan, the NICU's medical director. At any given time, from 30 to 40 babies are living in the unit, in heated isolettes at first, later in tiny cribs, each decorated with a colorful mobile - a felt duck, a bunny, a horse, all swinging from a bright canopy. Two-thirds of the babies, like Destiny, are preemies; the others are full-term but born with serious anomalies that make them candidates for the most skilled and specialized medical wizardry.

Twenty years ago, many of these babies would not have survived. Today, advances, including the meticulous team care they receive in NICU units like this one, give them a more hopeful prognosis. Most of the infants will leave eventually, says McGowan, although the quality of their lives often remains unknown. They will remain at high risk for a medley of complications - including cerebral palsy, mental retardation, growth deficiencies, vision and hearing problems, fragile lungs, and school difficulties. Some, despite the most heroic efforts, won't make it. "You never get used to it," McGowan says. "When a baby dies, I still cry."

"In my 25th week of pregnancy, I stopped feeling her move," says Dent, Destiny's mom, who was being treated for preeclampsia, a leading cause of premature birth and fetal complications. The condition is characterized by the mother's dangerously high blood pressure and protein in her urine. "I was so scared and nervous and numb," Dent says. "I didn't know what to feel." A few hours later, her baby was delivered through a cesarean section. "My husband, Aaron, and I were both traumatized," Yolanda remembers. "All I had dreamed about was having a healthy baby. I cried for days."

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