January 5, 2003 |
Phil Wenrich, emergency management coordinator for Chadds Ford Township, is running a race every day. For his life. By all measures, Wenrich has already won. Diagnosed at birth with cystic fibrosis, which usually proves fatal by the time a person is in his or her early 30s, Wenrich, 40, says he is living on "overtime. " "I have claws in the back of my neck that is cystic fibrosis trying to take me over. I talk to my disease every day. I could let it take me out, but I won't let that happen.
June 20, 2002 |
Fourteen years ago, Bill Shea met Erik Engwall in what some would consider a chance encounter - but not Shea. Erik of Deptford, Gloucester County, was a 12-year-old cystic fibrosis patient at Children's Hospital of Philadelphia, and Shea was visiting an ill nephew. The two began a friendship that became the Friends of Erik, a charity that has since raised close to $1 million for children with serious illnesses and disabilities. "Erik was a good kid, and we had an instant connection," Shea said.
January 14, 2002 |
Jwon, 4, and his brother, Damien, 3, need to stay together when they are adopted. Their social worker is seeking a family that has older children or no children in the home. The brothers do best in small-group settings, and are friendly and outgoing. They go to a day-care center, where Jwon receives special speech services. They play together on the swings, slides and climbing bars, and enjoy being outside. They also like playing with building blocks, pushing around trucks, eating peanut butter and jelly sandwiches, and watching cartoons.
May 20, 2001 |
An auto show to benefit the Delaware Valley Cystic Fibrosis Foundation is scheduled for 9 a.m. to 5 p.m. June 3 at Interboro High School, 16th Street and Amosland Road, Prospect Park. The show is a project of seniors at the high school. Participants may register their cars for $10. There will be antique, classic and custom automobiles. Admission is free. For information, call the foundation at 610-325-6001. Jenkintown's Community Alliance. On Wednesday, 5 percent of all sales at Fresh Fields in Baederwood Center, 1575 The Fairway, will go to physical improvements in the borough planned by the alliance, which has set as its goal a walkable, tree-lined community in Jenkintown.
May 22, 2000 |
Ilene Hollin likes to zap her teammates and coaches with one-liners and jokes. Then, when the laughter dies down, she awes them with spellbinding desire and determination. Hollin, a Plymouth-Whitemarsh junior, is not the fastest player on the Colonials' lacrosse and field hockey teams. She is not the strongest or most talented. She may be the most inspiring, though. Hollin has cystic fibrosis, a disorder of the lungs and digestive system, but her teammates and coaches say they can't tell by the way she plays and practices.
April 7, 2000 |
It is not as though an upstart company beat NASA to the moon. Though Celera Genomics yesterday claimed to have beaten a $3 billion government-sponsored project designed to read out the entire human genetic code, scientists say the two-year-old company has not landed yet. The information collected by Celera is in pieces and the company's scientists still must assemble them to equal what the government has set out to do with its Human Genome...
April 2, 2000 |
Pat and Jeff Robbins of Phoenixville had known this was coming for close to 25 years. But how do you prepare for having your heart torn out? On March 23, the second of their identical twin daughters died of cystic fibrosis. Her sister had died of the same disease four months earlier. "If I stop to think about what has happened," Pat Robbins said last week, "I won't be able to function. " Said her husband: "I have a million small regrets - I should have called them more, I should have told them I loved them one more time.
March 28, 2000 |
Vanessa L. Robbins-Burke, 25, an aspiring actress whose real-life honesty and strength of character will forever play on in the hearts of those who loved her, died of cystic fibrosis Thursday at her home in Mill Valley, Calif. Miss Robbins-Burke, who grew up on a horse farm in Chester Springs, lived four months longer than did her identical twin sister, Charlotte Robbins-Sylvester, who died of the same hereditary disease. They were 9 months old when they were diagnosed with cystic fibrosis, whose symptoms include a buildup of sticky mucus in the lungs, blockage of the intestines, and disruption of the function of the pancreas.
February 13, 2000 |
Dr. Debra Leonard is frustrated. As chief of the molecular pathology laboratory at the Hospital of the University of Pennsylvania, she has seen how genetic screening makes it possible to diagnose more diseases and improve the odds of predicting who will get others. It allows her to tell families that a child's breathing problems mean cystic fibrosis - or reassure them that it doesn't. Genetic screening also can add to the weight of evidence that an aging parent's confusion is caused by Alzheimer's disease.
November 18, 1999 |
Charlotte A. Robbins-Sylvester, 24, an artist with a flair for color, a writer with a knack for turning a phrase, and a fighter with fierce determination, died last Thursday of cystic fibrosis at Marin General Hospital in Greenbrae, Calif. Mrs. Robbins-Sylvester knew she was going to die young. She was born with cystic fibrosis, which essentially drowns its victims in their own fluids, and had been ravaged by its attending infections for the last half-dozen years. She was in and out of the hospital a lot in that time.