January 3, 2014 |
Javier Acosta, the Bronx boy who helped to improve children's access to adult donor lungs, is recovering from a double lung transplant at Children's Hospital of Philadelphia, according to his mother. But his family's fight to change lung allocation rules turned out to be moot in his own case. Javier, who has cystic fibrosis, turned 12 in August, which automatically made him eligible for adolescent or adult lungs based on his medical need. Two months later, he received lungs from a donor over age 12. "I just want to let everyone know that Javier had a lung transplant on Oct. 13 and is doing fine," his mother, Milagros Martinez, said in a statement.
December 20, 2013 |
COATESVILLE Rick Ortega doesn't hide the fact that he's made some mistakes in his 63 years. He abused alcohol, and in May, 25 years after going to rehab, he received his liver-cancer diagnosis. He's always known he had to deal with the consequences of his choices and didn't make excuses, a lesson he passed on to his two children, his son Matt said. "That's how he led his life," Matt Ortega, 39, said, "and I respect him for that. " The lessons he learned from his father, he said, made the choice to donate part of his liver to him easy.
November 25, 2013 |
PHILADELPHIA Inspired by the case of a young man with autism who was denied a place on a heart-transplant waiting list, a Philadelphia legislator will soon begin gathering support for a state bill that would prohibit discrimination against people with disabilities who want organ transplants. Rep. John Sabatina (D., Phila.) plans to introduce "Paul's Law" in honor of Paul Corby of Pottsville, whose mother, Karen, said doctors at the Hospital of the University of Pennsylvania refused to put him on the heart-transplant list because of his autism.
October 28, 2013 |
It was fall 1993, and Henri Gutner's kidneys were continuing to fail. He was always tired, his complexion was green, and he was sleeping as much as 20 hours a day. "I had him maybe six hours a day when he was capable of doing anything," recalls his wife, Jeri. With his kidney function down to 8 percent, Gutner, then 43, was told he was facing dialysis and the inevitable disruption it would bring to his - and his wife's - life. "I said, 'There's no way I'm sending my young husband to dialysis,' " said Jeri Gutner, who is five years younger.
August 29, 2013 |
LIKE MOST little girls, the first thing on Sarah Murnaghan's mind when she got home yesterday was playing with her siblings and her dolls. Of course, it was even more special for the 11-year-old Newtown Square girl to return home for the first time in six months after being released from Children's Hospital of Philadelphia after two double lung transplants this summer. "Sarah's looking forward to being a regular little kid, to going outside and playing with her friends," her mother, Janet Murnaghan, said during a news conference in front of the family's home.
August 28, 2013 |
Sarah Murnaghan, the 11-year-old girl whose plight led to a national change in lung-transplant rules, was released on Tuesday and is now back home in Newtown Square. Sarah, who has cystic fibrosis, entered Children's Hospital of Philadelphia in February in dire need of a double lung transplant. Although she remains very weak, she has made remarkable progress since June, when she received two double-lung transplants of adult organs within days. Sarah had waited 18 months for children's lungs before her family waged a media campaign and filed a federal lawsuit to have her placed on the adult-transplant waiting list.
August 2, 2013 |
JAMAICAN DAVE. We've been spotting that presenter's name on concert posters for 15 years. In fact, almost every reggae show that lands in town, most visibly at big venues like the Electric Factory and Blockley, seems to carry his production credit. For a while, we thought it could just be a brand, like Maui Jim sunglasses. But there really is a guy named Dave Russell - a native of Kingston, Jamaica, and a Philadelphia transplant since 1994 - who's made it his mission to bring the reggae music and Rastafarian "one-love" culture here.
July 29, 2013 |
Six years ago, Liz Donaghy got the chance few get, and even fewer take: She reinvented herself. Her midlife metamorphosis consisted of the following: She and her partner, Jamie Mullen, exchanged their first-floor brownstone apartment in Philadelphia's Fairmount section for a bungalow in Longport, at the Jersey Shore. Liz, now 42, stopped selling investments and began growing sweet peas, sorrel, and more than 250 other plants on the couple's new property, many of them for her new gardening business.
July 14, 2013 |
A breathing tube was surgically placed in Sarah Murnaghan's throat Friday, her mother reported in a Facebook post. The 10-year-old Newtown Square girl, who received a double-lung transplant at Children's Hospital of Philadelphia on June 12 and another transplant June 15 after the first one failed, has needed a breathing machine since the operations. Janet Murnaghan said the new procedure, known as a tracheotomy, was needed because Sarah has been on long-term ventilator support and the weaning has been slow.