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NEWS
July 14, 2013 | By Sean Carlin, Inquirer Staff Writer
Trips to the emergency room were frequent for Nereida Smith in the 1990s. She would be in the hospital for everything from pneumonia and bronchitis to stomach pains, and doctors had doubts about her symptoms. "They couldn't pinpoint it," said Smith, of Cinnaminson. The Brooklyn, N.Y., native was finally diagnosed in 1996 with systemic scleroderma, a disorder that causes her immune system to attack her lungs. Her health has deteriorated so much that she now needs a double-lung transplant to survive.
NEWS
July 10, 2013 | BY JESSICA GLAZER, Daily News Staff Writer glazerj@phillynews.com, 215-854-5915
AFTER A DOUBLE lung transplant last month, Sarah Murnaghan is fighting pneumonia in her new right lung, her mother said yesterday. Doctors believe the girl developed pneumonia by breathing in contents from her stomach, her mother said. "Yesterday was tough. Today she is more stable, but this is definitely a large set back," Janet Murnaghan posted on Facebook about noon. Last month, Sarah, 10, who suffers from cystic fibrosis, received two adult lungs after her parents challenged a rule that prevented children younger than 12 years old from receiving adult lungs.
NEWS
June 30, 2013 | By Stacey Burling and Marie McCullough, Inquirer Staff Writers
Sarah Murnaghan, the 10-year-old whose plight led to a national change in lung-transplant rules, suffered a catastrophic complication after receiving portions of adult lungs on June 12, necessitating a second transplant three days later, her parents revealed Friday. The Newtown Square girl is still being weaned from a ventilator at Children's Hospital of Philadelphia, her parents said in a statement on Facebook, but is doing better. "It all happened very fast. We weren't expecting it," Janet Murnaghan said at a news conference Friday, explaining why it took almost two weeks to publicly reveal the second transplant.
BUSINESS
June 20, 2013 | By Stacey Burling, Inquirer Staff Writer
Hahnemann University Hospital has voluntarily inactivated its heart transplant program because, the hospital said, it lacked backup surgical care. John Entwistle 3d, who had been surgical director of Hahnemann's heart transplant program, left to became surgical director of rival Thomas Jefferson's University Hospital's heart transplant program late last year. Hahnemann closed its program June 1, communications coordinator Gianna DeMedio said. Ten patients were on the heart transplant waiting list at that time and were told they could be listed elsewhere without changing their place in line.
NEWS
June 15, 2013 | By Marie McCullough, Inquirer Staff Writer
One day after receiving a set of adult lungs, 10-year-old Sarah Murnaghan of Newtown Square was recovering Thursday at Children's Hospital of Philadelphia while thousands of congratulatory messages went up on her Facebook page. The 1960s teen singing idol Bobby Rydell posted, "I received a double transplant (kidney & liver) in July. I have been thinking and praying for Sarah since I first heard. Now she, too, has an angel donor rooting for her!" Sarah, who has cystic fibrosis, had been waiting 18 months for children's lungs when her family waged an all-out media and legal campaign to get her placed on the adult-transplant waiting list.
NEWS
June 14, 2013 | By Marie McCullough, Inquirer Staff Writer
Sarah Murnaghan, the 10-year-old Newtown Square girl dying of cystic fibrosis, survived six hours of surgery Wednesday to receive lungs from an adult donor - a transplant made possible by her family's fight to change lung-allocation rules. "We are thrilled to share that Sarah is out of surgery," her mother, Janet Ruddock Murnaghan, posted on Facebook. "Her doctors are very pleased with both her progress during the procedure and her prognosis for recovery. " Children's Hospital of Philadelphia, where Sarah has been in intensive care for weeks, told the family at 10:30 p.m. Tuesday viable adult lungs were available, according to Sarah's aunt, Sharon Ruddock.
NEWS
June 12, 2013 | By Marie McCullough, Inquirer Staff Writer
After weeks of pleas from the family of 10-year-old Sarah Murnaghan of Newtown Square, the organization that sets national organ-transplant policy voted late Monday to temporarily improve children's access to adolescent and adult donor lungs, despite criticizing a federal judge for doing the same thing for her. The executive committee of the Organ Procurement and Transplantation Network met to consider whether children under 12 were being treated...
NEWS
June 11, 2013 | ASSOCIATED PRESS
PITTSBURGH - The national organization that manages organ transplants rejected making emergency rule changes yesterday for children younger than 12 who are waiting on lungs, but created a special appeal and review system to hear such cases. The executive committee of the Organ Procurement and Transplantation Network held a teleconference, and many members voiced serious ethical and medical concerns about a recent federal judge's ruling. The meeting was prompted by the cases of 10-year-old Sarah Murnaghan of Newtown Square and 11-year-old Javier Acosta, two terminally ill children who are awaiting transplants at Children's Hospital of Philadelphia.
FOOD
June 7, 2013 | By Craig LaBan, Inquirer Restaurant Critic
I pulled into the muddy lot between the train tracks and the old sandwich shack, and John Bucci Jr. was waiting. It was after hours at John's Roast Pork in South Philadelphia, but his clean white apron was pulled taut around his waist. And as the garlicky smell of roasting picnic hams rubbed in rosemary wafted from the luncheonette to greet me, Bucci pumped his fists skyward and broke into a victory dance. "You're back!" he said. But the shocker here was that John Bucci Jr. was back - and glowing healthy against tall odds.
NEWS
June 6, 2013 | By Stacey Burling, Inquirer Staff Writer
Saying that three other children at Children's Hospital of Philadelphia are just as sick, Kathleen Sebelius reiterated Tuesday that she would not personally intervene to help a local 10-year-old whose desperate family wants organ-allocation rules changed to give her a better shot at a lung transplant. A spokesman for the secretary of Health and Human Services said Sebelius was at a budget hearing Tuesday on Capitol Hill when Pennsylvania lawmakers asked about Sarah Murnaghan of Newtown Square.
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