November 25, 2013 |
PHILADELPHIA Inspired by the case of a young man with autism who was denied a place on a heart-transplant waiting list, a Philadelphia legislator will soon begin gathering support for a state bill that would prohibit discrimination against people with disabilities who want organ transplants. Rep. John Sabatina (D., Phila.) plans to introduce "Paul's Law" in honor of Paul Corby of Pottsville, whose mother, Karen, said doctors at the Hospital of the University of Pennsylvania refused to put him on the heart-transplant list because of his autism.
October 28, 2013 |
It was fall 1993, and Henri Gutner's kidneys were continuing to fail. He was always tired, his complexion was green, and he was sleeping as much as 20 hours a day. "I had him maybe six hours a day when he was capable of doing anything," recalls his wife, Jeri. With his kidney function down to 8 percent, Gutner, then 43, was told he was facing dialysis and the inevitable disruption it would bring to his - and his wife's - life. "I said, 'There's no way I'm sending my young husband to dialysis,' " said Jeri Gutner, who is five years younger.
August 29, 2013 |
LIKE MOST little girls, the first thing on Sarah Murnaghan's mind when she got home yesterday was playing with her siblings and her dolls. Of course, it was even more special for the 11-year-old Newtown Square girl to return home for the first time in six months after being released from Children's Hospital of Philadelphia after two double lung transplants this summer. "Sarah's looking forward to being a regular little kid, to going outside and playing with her friends," her mother, Janet Murnaghan, said during a news conference in front of the family's home.
August 28, 2013 |
Sarah Murnaghan, the 11-year-old girl whose plight led to a national change in lung-transplant rules, was released on Tuesday and is now back home in Newtown Square. Sarah, who has cystic fibrosis, entered Children's Hospital of Philadelphia in February in dire need of a double lung transplant. Although she remains very weak, she has made remarkable progress since June, when she received two double-lung transplants of adult organs within days. Sarah had waited 18 months for children's lungs before her family waged a media campaign and filed a federal lawsuit to have her placed on the adult-transplant waiting list.
August 2, 2013 |
JAMAICAN DAVE. We've been spotting that presenter's name on concert posters for 15 years. In fact, almost every reggae show that lands in town, most visibly at big venues like the Electric Factory and Blockley, seems to carry his production credit. For a while, we thought it could just be a brand, like Maui Jim sunglasses. But there really is a guy named Dave Russell - a native of Kingston, Jamaica, and a Philadelphia transplant since 1994 - who's made it his mission to bring the reggae music and Rastafarian "one-love" culture here.
July 29, 2013 |
Six years ago, Liz Donaghy got the chance few get, and even fewer take: She reinvented herself. Her midlife metamorphosis consisted of the following: She and her partner, Jamie Mullen, exchanged their first-floor brownstone apartment in Philadelphia's Fairmount section for a bungalow in Longport, at the Jersey Shore. Liz, now 42, stopped selling investments and began growing sweet peas, sorrel, and more than 250 other plants on the couple's new property, many of them for her new gardening business.
July 14, 2013 |
A breathing tube was surgically placed in Sarah Murnaghan's throat Friday, her mother reported in a Facebook post. The 10-year-old Newtown Square girl, who received a double-lung transplant at Children's Hospital of Philadelphia on June 12 and another transplant June 15 after the first one failed, has needed a breathing machine since the operations. Janet Murnaghan said the new procedure, known as a tracheotomy, was needed because Sarah has been on long-term ventilator support and the weaning has been slow.
July 14, 2013 |
Trips to the emergency room were frequent for Nereida Smith in the 1990s. She would be in the hospital for everything from pneumonia and bronchitis to stomach pains, and doctors had doubts about her symptoms. "They couldn't pinpoint it," said Smith, of Cinnaminson. The Brooklyn, N.Y., native was finally diagnosed in 1996 with systemic scleroderma, a disorder that causes her immune system to attack her lungs. Her health has deteriorated so much that she now needs a double-lung transplant to survive.
July 10, 2013 |
AFTER A DOUBLE lung transplant last month, Sarah Murnaghan is fighting pneumonia in her new right lung, her mother said yesterday. Doctors believe the girl developed pneumonia by breathing in contents from her stomach, her mother said. "Yesterday was tough. Today she is more stable, but this is definitely a large set back," Janet Murnaghan posted on Facebook about noon. Last month, Sarah, 10, who suffers from cystic fibrosis, received two adult lungs after her parents challenged a rule that prevented children younger than 12 years old from receiving adult lungs.